“We’re not Booboo and Isabella any more…

…we the Chef Girls in the whole world!” This was Isabella’s exclamation to me when we were preparing waffles yesterday. Doesn’t that just make you want to plotz?! Too cute as far as I’m concerned.

Her comment and her ability to express herself made me happy and sad. You see, there are so many people on the autism spectrum who are unable to express themselves verbally. For their loved ones, it might be a guessing game as to what their needs are. I am happy that Bells can express herself and sad when others can’t.

Bells doesn’t show many outward signs of her condition. If you don’t spend much time with her you would just see a “normal,” five year old girl. It’s when you are in her company for a while that you see the stimming by waving around a piece of paper she has torn, leaving behind shredded paper in her wake or wonder at her astute observations not realizing she is repeating scripts from a tv show (delayed echolalia), one way she learns to express herself. She also won’t poop on the toilet yet; a common problem in our community.

We are able to take Isabella out for a meal with little possibility of a meltdown. Many, many families on the spectrum aren’t so blessed. Their worlds are very small, unable to venture out to do the simplest of things with their child(ren) for fear of the world being too much for these special loved ones. Their neurotypical children are pulled in as well and their parents have the guilt of that on their already burdened shoulders.

Yes, we have it good. My heart goes out to the families who are fighting the fight and are leading the way. Two blog sites you might be interested in by moms who are making a difference are
A Diary of a Mom and Rhema’s Hope. Want to know how the mind of a person with Asperger’s Syndrome works? Visit Aaron at Life on the Other Side of the Wall.

I love this community.

Advertisements

3 responses to ““We’re not Booboo and Isabella any more…

  1. It’s wonderful she does have the ability to communicate and hopefully everything will continue to get better with the proper amount of attention and education. I’ll keep you in my prayers.

  2. Hello, my friend. Thank you for leaving encouraging words on my blog – I need to hear them. What you said was correct, of course. It is only by the grace of God that I keep getting up and moving along… and I know I will continue to do so. I know what He wants me to do, so I’ll keep doing it, even when it seems hard.

    I’m glad things are going well with your sweet Bells.

    ~Ann~

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s