Jabuti

Precious Isabella is now in the third grade.  Although she is still in a contained autism classroom, she takes her specials and eats lunch with the general education children.

The third and fourth graders put on a wonderful play from a book called “Jabuti the Tortoise:  A Trickster Tale from the Amazon” by Gerald McDermott.   Their music teacher wrote the music and they spent three months learning to recite, play act, and dance.

It was delightful from the moment we arrived.  A number of children greeted Isabella; she is one of them.  This is such an answer to prayer!

When the children were on stage, Bells was just as engaged as the other children.  More so, actually, as she was waving to her mom throughout!

The reason we stay in a town with especially high rents is because Isabella gets a great education.  I wish this was true for all people on the spectrum.

Without a Leg to Stand on…But With Hope

Because of complications of diabetes, my beloved mother-in-love needed to have the lower part of one leg amputated. (Sorry if the title offends…this is not my intention and I am not making light of this).

When Mom died this past January, my daughter told my granddaughter that Grandma is in heaven, with two legs, bouncing around in a field of flowers.

This is how my Isabella interpreted this tableau:

I lost the picture!

(almost) Unbearable

When we decide to have children, we think of precious newborns, inquisitive toddlers, cuteness and innocence. What we don’t think of is an emerging human being with opinions and weaknesses, rebellion and pain.

Seeing one of my children or my granddaughter in pain can do me in. There are times I think it is unbearable. Even prayer and reading the Word of God can have little effect…or so I think…

Last week, there was a night I thought I was going to break, literally. A number of years ago, I was hospitalized (my choice) for depression and anxiety but have grown enough in knowledge and faith to be able to stand up to the demons that plague me.

My precious granddaughter has been going through a rough time and I became so upset that I felt like nothing could bring me strength. People are praying about the situation and there is comfort in that but I was about to crack.

For several months, I have been writing out my prayers so I went to my prayer spot and cried out my pain and the injustice of what is happening to my girl. I reminded God of His promises to those who love Him and trust Him. I laid it all on His broad, broad shoulders.

And I slept well for the first time in a very long time.

Tragedy and Triumph

My eight year old granddaughter who has autism. She is the light of my life.

When a family first gets the diagnosis of autism, they often go through a mourning period. To help, there are wise writers like the author of Welcome to Holland, Emily Perl Kingsley.

This adventure has been difficult and delightful, tragic and triumphant, humbling and holy.

God gives us beauty from ashes. My beautiful girl will always triumph because she is wonderfully made, not a mistake, perfect in His eyes and mine.

treelightingbooboo

A Blog Dedicated to…

There are some amazing autism blogs out there. One that I read on a regular basis is Diary of a Mom. Jess has helped me understand my granddaughter in ways I may have never thought of through sharing her insights into her family’s journey in Autismville.

Another is Autism in a Word. Jeneil takes us through a journey of hope and faith. She fills my heart and my soul.

I was finally able to get my daughter to read one of Jess’ entries and I do believe she is hooked. She suggested I write a blog about autism from a grandparents’ perspective. Duh! What does she think I have been doing all these years?! To write about autism exclusively is not something I believe I could do, though. There is no shortage of material but I am not versed enough in the things that would help others the way the other blogs do.

There is not one person who has been following all these years who doesn’t know that my Isabella is my heart. She is the source of so much joy and love. We love each other unconditionally and I don’t see that changing.

Bogging has taken a back seat since facebook but, once again, I will try to get back into it.

Many blessings to all in the new year. g

Life Goes On

The last few weeks have flashed by in a whirlwind.

The Girl and Bells moved into a new place close by and we helped with that. Exhausting for all involved and we are hoping for the best.

Establishing Isabella in her new schedule at school has been difficult. Instead of being in the contained classroom all day, she has been entering school with the “neuro-typical” (N.T.) class (e.g. regular kindergarten class) and doing all her specials (library, phys. ed., music, etc.) with that class whilst doing her academics in the contained (autism) classroom. Her teacher from last year and the child study team leader felt she was ready for this. However, our nearly always happy girl has shown anxiety like never before.

Fortunately, her child study team leader saw her crying when she was leaving the gym one day and Bells was able to express that it was too noisy and too many kids and whatever else was bothering her. As a result, the team leader was able to ascertain which specials Bells felt comfortable. Things are going a bit better now. Maybe one more week will show a greater change. I want my happy girl back.<ins datetime=”2011-10-16T22:36:47+00:00″>

Yesterday, I gave Himself the day off and went to a wedding and reception with some friends. You know, I just might make a habit of this! We have gone to so many wedding receptions because of the number of children his friends have that it tends to get old. He is older than I am and some of MY friends’ children are of marrying age now. If he isn’t friends as a couple with my friends I will probably go the weddings by myself!

With all that has been going on, I am beat. When you don’t give in to the fatique of fibromyalgia, it will bite you in the bum. Today has been a true day of rest as in staying in bed until mid afternoon and doing no work at all. It’s a crazy balancing act but at least I am not experiencing a lot of pain. Yea! (That was last week when I didn’t give in! Flat on my back and sleeping for a day but that’s okay.)

All in all, life hasn’t been all that bad. Our bellies are full, we have clothing on our backs, a roof over our heads and a loving Father in heaven who meets all our needs.

Blessings to all, g

Oy, how did that Happen?

My day was planned out perfectly: bring Isabella to school, stop at the library, weight watchers meeting, trip to an outlet area for new “unmentionables” and maybe a new dress for our niece’s wedding, maybe a trip to Trader Joe’s and then, blessedly, a nap!

But nooooooo! As I pulled into the drop off area at school, I noticed I was the only one there. The district didn’t use all its snow days so we have a four day Memorial Day weekend. No one told me! Isabella was confused but dealt with it. “Is school finished?” “For this week it is, honey.”

After a week of congestion and coughing (allergies?), Bells could have slept in this morning and this upset me. I hate to wake her up when she is in a deep sleep. That might have bothered me more than having my plans upset.

We went to the library, one of Bells favorite places, and then to weigh in but not stay for the meeting (another pound and a bit – just over 21 pounds!) and then we went to see great grandma. This was a good thing as she adores her little pigeon (pah-jink-ah in Slavish) and she is pretty fond of me, too. We all packed into my car and went to the outlets together. Isabella made out the best with sandals, a swim suit and a dress. I got two tops and a skirt – only $10 each! -and I got a lovely top for my daughter, too. Nothing for the wedding and no undergarments.

We had a bite to eat in the food court and went back to great grandma’s where we waited for himself. He ate the gyro we brought back for him and then we drove up to where The Girl works so Bells could go swimming.

Are you tired yet? I am! Himself went home and I went to get some stuffed cupcakes and then home to cook. Ugh.

Since dinner, I have, basically, been sitting in my recliner fooling around on the netbook and “watching” mostly mindless tv.

Now, my perfectly planned day is another example of God’s sense of humor. “Man plans and God laughs?” Had everything gone according to plan I still would have taken Isabella by her mom but then great grandma wouldn’t have had her usual Friday visit. My mother-in-law adores Isabella. My girl brings great joy to her and this was a hard week because it would have been my father-in-law’s birthday. I am so happy we were able to bring joy to Mom

As for tomorrow, I am afraid to make plans! Truthfully, all I want is to sleep as long as possible and stay in bed until I am good and ready to get up! If someone gets in the way of that they had better look out. If Mama ain’t happy ain’t nobody happy!

To my American friends, let’s not forget the reason for Memorial Day even whilst we enjoy our bbq’s and whatnot.

blessings, g