A = April and Autism

Of course! Autism is part of our regular life as our ten year old granddaughter is autistic. We spend time with her nearly every day.

You will hear a lot of talk of “lighting it up blue for autism awareness.” May I ask that you don’t? Light it up blue, that is.

You see, this campaign was started by a group called Autism Speaks. The problem with this group is that it does not speak for our girl nor does it speak for autistics in general. The blue is representative of the fact that the majority of the people with autism are male. My girls prefers pink.

Notice I did not say “children” with autism. Children with autism grow up to be adults with autism. Autism Speaks doesn’t speak to that.

Also, Autism Speaks wants to “cure” autism.  Have they ever asked adult autistics if they want to be cured?  Where does their voice come in?

Jess over at A Diary of a Mom explains this so much better than I can. This blog post speaks specifically to the reasons why Autism Speaks no longer speaks for us.

Why don’t we light it up purple? Doesn’t blue plus pink = purple?

Blessings, gail

Awareness…nah

It’s that time again…Autism Awareness Month. Uh, I do believe that most of the people in the literate world are well aware of autism.

What we need to work on is acceptance and education.

One of my favorite autism bloggers, Jess Wilson of A Diary of a Mom, has taught me that age appropriate is just words. That is why I purchased a Baby Einstein Baby Neptune toy for my granddaughter who is eight years old. She loves it.

Jess has also taught me that wherever my girl is is just fine with me. She doesn’t have to fit in. She doesn’t have to fit a mold.

My Isabella is fun and smart and loving. She puts on a brave face all day long and, sometimes, cries at night to release all the tension she has from putting on that brave face. My girl is one of the strongest people I have ever met and I admire her grit. A

Accept people where they are at. Learn what they are all about.

A to Z Challenge!

Another A to Z Challenge! Participating this year will either push me over the edge or keep me sane as we are preparing to move.

A is for autism. Of course it is! April is Autism Awareness Month in the USA and April 2nd is World Autism Awareness Day.

Frankly, I don’t know of anyone who isn’t aware of autism. I would like to change this to Autism Education Month. Do you know the difference between a tantrum and a “meltdown?” Here you go: http://www.youtube.com/watch?v=ClvnCyP3DLU

All people with autism are geniuses! From what I read, 10% of the general population has genius I.Q.’s. In the autism community, it is thought that 20% do. Not exactly everyone but a significant number.

People with autism don’t like to be touched. This is true for some but, for others, like my precious granddaughter, it is not. She loves to be held and to show and receive affection.

Don’t vaccinate your child! I don’t agree with this. Work with your pediatrician when it comes to a vaccination schedule. It doesn’t have to be done all at once. Some can be left out. You can have your child’s blood tested before boosters to see if they even need them.

Most importantly, learn the signs of autism:

No big smiles or other warm, joyful expressions by six months or thereafter

No back-and-forth sharing of sounds, smiles or other facial expressions by nine months

No babbling by 12 months

No back-and-forth gestures such as pointing, showing, reaching or waving by 12 months

No words by 16 months

No meaningful, two-word phrases (not including imitating or repeating) by 24 months

Any loss of speech, babbling or social skills at any age

Bless you and, hopefully, will see you tomorrow. gail

Awareness?

This is the first in my attempt to do the A to Z Blogging Challenge. Twenty-six days, twenty-six entries, one for each letter of the alphabet.

As April is Autism Awareness Month, I can see no way around starting off with an “awareness’ blog.

At this point in time, I do believe that anyone who has access to communications is “aware” of the existence of autism. Overall, I find people to be quite kind when they learn my granddaughter is on the spectrum. Seems that everyone has someone they know who has been touched by this disorder.

This site, http://www.cdc.gov/ncbddd/actearly/milestones/index.html, will give you milestones your child ought to be reaching at certain ages. EARLY intervention is so very important to your child’s development.

Awareness isn’t just knowing that something exists; it is knowing about and dealing with the disorder as early as possible Did I say that already? I guess I really mean it!

Personally, I knew something was going on with my grandbaby before her first birthday. I still kick myself for not saying somethibng to my daughter sooner than I did. Better to be cautious than sorry.

Any questions? Looking forward to visiting and getting to know some of you. gail